Well where do I start.....

 

My eldest daughter, Abigail, (she's 4) been a bit off lately, being naughty and not eating her food, then we noticed she's loosing a lot of weighty and drinking all the time, by that I mean hiding cups all over the house so she can have a drink, then she started wetting the bed and had no control over her urine production, she would need to go every 5 mins... We thought she may have diebetes.... It's been going on for a about 3 weeks so we got her in to the Dr's and they did a few tests and found nothing, they took blood and said to come back in a week... This was 12 o'clock Wednesday, at 5 they rang and said she needed to be admitted to hospital for tests.... Imaginably Lou and I were worried. Well they donecsome more blood tests and today took her for an MRI scan......my 4 year old daughter has a brain tumor! The Dr spoke through a fewcthings but tbh I/we were in shock and didn't really take a lot in... To make matters worse they confirmed she has diebetes as well.....I think making the phone calls to tell family was the hardest things I have ever done.

It has really put life in to persective, things that mattered before now seam very trivial....

 

Don't know I feel the need to unload on here, never though I would.... Never thought I would need to.....

 

Don't really know what else to say......still in shock .....

 

Neil

Edited August 22, 200817 yr by Darkside TT

great news mate you and lou keep your chins up, I know how hard it is to cope when kids are going through such a hard time.

Good news fella, keep us up to date on her progress. Nick

I hardly come on here these days so have only just read this thread. Neil I felt sick for you when I read your first message but I am so pleased to hear from you update that Abigail is on the mend and getting back to her old self.

Best wishes GLENN

Well its been a while coming but today Abi had her 6 month scan, its the second scan she's had since finding the tumor but its a quiet important one,

With her condition about 98% of children form another more nasty tumor (germinoma) and today is the day for the scan, we've been here since about 8am

and Abi has not long come round from the scan to say Lou and I are on tender hooks is an understatement, we now have a 4.5 hour wait to see the neurosergon

, Her apointment is at 3.30!

On the plus side her medician is working well with the odd few days of mood swings, but when your on 1200 microgrames a day :shock: it's underd standable lol

but its keeping her fluids intake/expelling well under control and she's put on about 4kgs in a few months, ishe now weighs 18.2 so that's good.

 

We are still waiting to find out why this has happend but the 5 speciists she's under still don't know, all we can do is carry on and hope things are ok and don't get any worse.

 

Well hopefully we get the results we hope for later. On top of all this we're missing Paige's first day at school because they changed the appointments grrrr, just can't win ATM :(

 

A very nervous

 

Neil & Lou

fingers crossed for you all bud

Hope it all goes well

;)Fingers and toes crossed bud

Fingers crossed for you buddy :D

All the best fella.

Good luck to you and the family bud!

just hope all goes well

Mate i went through EXACTLY the same thing with my son when he was 10 he is now 21 and working as telecoms Engineer , he has a nice Zip up the back of his napper as a reminder he is mortal ...but he has been given the all clear and lives life to the full, i sincerely hope and pray your daughter makes a wonderfull recovery , my thoughts are very much with you and your wife and your little one .....i wish you all the luck in the world buddy ...if you want to chat about post op and his risidual problems that your daughter may have (nothing too serious ) but he still has to this day , drop me a PM with your number on and i will galdly call you from Kazakhstan when im in from work tonight

Fingers crossed mate hope all is well

Mate i went through EXACTLY the same thing with my son when he was 10 he is now 21 and working as telecoms Engineer , he has a nice Zip up the back of his napper as a reminder he is mortal ...but he has been given the all clear and lives life to the full, i sincerely hope and pray your daughter makes a wonderfull recovery , my thoughts are very much with you and your wife and your little one .....i wish you all the luck in the world buddy ...if you want to chat about post op and his risidual problems that your daughter may have (nothing too serious ) but he still has to this day , drop me a PM with your number on and i will galdly call you from Kazakhstan when im in from work tonight

 

Thanks bud... :)

 

No op booked in at the moment, and as it stands they might just leave be... Guess we will have to see, not long now, about another hour and we're in with the neurosurgon.

 

Thanks for the good wishes all, means alot to us both

 

Neil and Lou

Good luck mate, Hope all is well!!

good luck mate, hope all goes well

Good luck mate, hope all goes well.

Best wishes to yourself and your family and i hope your daughter will be ok mate.

Good luck mate and i hope it is all good news.

All the best mate

all the very best to your little girl and your family

Best wishes buddy

All the best Neil, thoughts are with you and yours

Well we went in to see her specialist... Had a look at the MRI scan from earlier on in the day and there has been no change from the one in November, while this obviously good news it posess 2 bits of bad news firstly be has now discharged her from his care saying he will only get back involved if things get worse, and has now said they will scan her only once a year to keep an eye out for anything else, secondly we still have no clues as to what happened or what is going on with her. Her hormn specialist was present and nasicly said she may have had an infection that has burnt out her purtuity gland, and chances are she will medication dependant for the rest of her life, she added to this that knowing the cause would not change the way she was getting treated or indeed the treatment it's self, althogh that sounds like a cop out to me I suppose it's also true.

 

When I asked about the germinoma tumor she said although it's been reported that there is a link it's unlikely to come to that, agai. This obviously very good news. And with reguards to an op they will not operate as the tumor is behind her

Left eye and it will cause more problems and is more risky than just leaving it be.

 

So all in all very good news bit still no answers... By netted to me healthy and dn than clued up and very ill.

 

So there we have it I suppose....

 

Thanks for listening

 

Neil and Louise

I think thats good news mate!!