Well where do I start.....

 

My eldest daughter, Abigail, (she's 4) been a bit off lately, being naughty and not eating her food, then we noticed she's loosing a lot of weighty and drinking all the time, by that I mean hiding cups all over the house so she can have a drink, then she started wetting the bed and had no control over her urine production, she would need to go every 5 mins... We thought she may have diebetes.... It's been going on for a about 3 weeks so we got her in to the Dr's and they did a few tests and found nothing, they took blood and said to come back in a week... This was 12 o'clock Wednesday, at 5 they rang and said she needed to be admitted to hospital for tests.... Imaginably Lou and I were worried. Well they donecsome more blood tests and today took her for an MRI scan......my 4 year old daughter has a brain tumor! The Dr spoke through a fewcthings but tbh I/we were in shock and didn't really take a lot in... To make matters worse they confirmed she has diebetes as well.....I think making the phone calls to tell family was the hardest things I have ever done.

It has really put life in to persective, things that mattered before now seam very trivial....

 

Don't know I feel the need to unload on here, never though I would.... Never thought I would need to.....

 

Don't really know what else to say......still in shock .....

 

Neil

Edited August 22, 200817 yr by Darkside TT

Sorry to here this news buddy.

 

What can I say other than that you are in our thoughts.

 

As others have said if there is anything that you need don't hesitate to ask.

 

All the best to you and the family.

 

Darrell and Karen

We've got a seven month old daughter and cannot begin to imagine how we'd deal with what you and your family are going through - as you say, it puts everything else into stark perspective. As others have already said modern medicine is amazing, couple that with a childs natural resilience and hopefully things aren't as 'dark' as they seem at the moment. All our thoughts are with you and your family, take care, Steve, Nerida and Zhale

I have only come across this thread. Our thoughts are with you.

 

Keep strong for your daughter and familys sake. I'm on the other side of the Irish Sea, but if there is anything I can do to help, just shout.

I cant imagine what you must be going through, i get too emotional when it comes to things like this, i hope everything pans out well for you guys, keep strong and my thoughts are with you.

 

 

All the very best

Graham

Well a little update for you guys,

 

We went to Addenbrooke's today for Abigails contrast scan. This enables the specialist to get a better look as they use dye to show it all up properley.

 

Had to be there for 9am which meant leaving home at 7.30am. She had to be nil by mouth from 5pm yesterday so as you can imagine she wasn't a very hapy bunny this morn not being able to have a drink (especially with her diabetes insipidus).

 

Well we got there and sat around as you do in hopitals, they did all her ob's and we got her into a little gown..her scan was at 11:30am. She Had to have a general as trying to get a 4 year old to lay still in a massive magnet is never gonna happen....

 

 

The hardest thing i had to do was hold her down while they gassed her using the mask. Both Lou and I could do nothing but cry as she begged us to let her go....... The scan lasted about 20 mins (much quicker than her last one) and we sat anxiously waiting in a little room down the corridor. They managed to take her bloods through the canular she'd had put in, whilst asleep so that was good. They came and got us just as she was coming too and she was very agitated and distressed which was hard to see.

 

Back up on the ward Abi had to eat, drink and wee before they could let her home...... with no answers!!

 

so we still know nothing else!! it's so frustrating not knowing, but they have to consult with the radiologist and then our consultant and thenliase with peterborough so will prob have to wait till monday for any sort of update now but at least they let her home and she can have a few days away from hospitals!

 

All this and we are moving on Sat and still have so much to do...........................better get back to it lol.

 

 

Will update again when we know any more.

Edited August 28, 200817 yr by Darkside TT
bad spelling tut tut

Jeez, just to say: my thoughts are with you and your family mate.

All the very, very best to you all.

 

Simon.

It's bought a tear to my eyes reading this mate, having a daughter who is 6 who is my life and means everything to me is making this a hard read, I love kids and hate to see them / hear of them going through things like this.

 

I'm not sure what to say other than keep strong, pull together as a team and help her and each other get through this.

 

I'll be thinking of you guys, I wish you, Abi and your family all the best from the bottom of my heart mate.

Hello mate

 

We have a 19 month old daughter and she is our whole world so I really feel for you, nothing is more important than our children. I'll keep everything crossed for your little one. Keep positive and best wishes.

Hi mate,

Sorry to hear that. Hope all works out ok for her and the rest of you.

If you need anything just ask

Sorry but I, too, have only just haoppened upon this....

 

Not much I can say exceopt I wish you and your family my very best wishes.

update number 2.........

 

Well after scan number 2 we waited 4 days for any sort of reasult. The scan came back with tumor around her pertutay gland which they were hoping for, seam strange to hope for something like that but at least we would have a reason for her DI ( diabetes insipidus ) so now were are back at square 1........ We still have a tumor in ger top left section of her brain and DI with no apparent cause, were now waiting for an appointment from the nuero sergon with a look to operate and anappointment next monsay with the consultant dealing with Diabetes... On the plus side the medican for the DI seams to be working. Which is a releif, she's eating well, the bed wetting has all but stopped and her moods are back to normal, well for a 4 year old girl!!

 

Both Lou and I thank every one for their kind words... It means a lot to us both.

Edited September 6, 200817 yr by Darkside TT

that sounds like a big step in the right direction Neil tell your daughter to keep up the good work! :bow:

our best wishes go out to your daughter and family

I dont no what to say bud,things like this with children really put things in life into persective. No matter what, children that age are so strong she'll pull through,sounds like she's heading in the right direction already.Tell her to keep up the the good work getting better. Bless you all.

Not come on here much these days dude, But all i can say is keep strong for little one iv 3 kids so can only imagine how much trauma this is causing, Be positive.

 

All the best matey

 

Greg, katherine and kids.

Update number 3

 

Well medication has been up'd to 150 micro grams twice a day, and at last we have an appointment for the nuerosergon for next Friday, so we can discuss options for the tumor, hopefully....

 

And also a specialist professor for the D.I. Next Monday, so a busy weekend for her....

 

Will update once we have seen the specialist nest week

 

Neil, Louise, Abigail and Paige

Good luck it's about time you had some

Hello....

 

Can't think what to say from me and Liz except best wishes to little Abigail and fight your corner with medics to get her the very best attention. Hope it all goes well.

 

We can understand the stress you must be under so just stay strong for each other

 

Tony and Liz

Good luck mate

All the best

Shaun

Just seen this mate hope all goes well my thoughts are with you

Sorry to here about your terrible news. Hope they can get this sorted and your little un is back on form soon.

Well.........

 

we saw the neuro surgeon on friday, and its really good news....

 

no need for an op at this stage... (big weight off our minds) he does want to get another scan done around teh end of november, which will be 3 months after teh first one.

 

but for now hes happy with how things are.

 

just need to fatten her up a little as the weight loss has been quiet bad over teh last 12 weeks...

 

The DI professor was not quiets as promising, they are baffeled as to why she has this for of diabetes and why it came on so quickly.. they have no answers, but have again increased her meds, shes now on 2 tablets twice a day, and the next stage will be 3 times a day, which is awkward as she now at fully time school and the teachers arnt allowed to give her the meds... or allow her to take them her self (we crush the tabs and mix them with juice.) although we could sneek them in to a little juice for her and tell her to only drink it at lunch time.....

 

but for now we both feel relieaved and can start to move towards normality again......for now.

 

Neil & Lou

Whoooooooooooo Hooooooooooooo. Excellent news mate :)

Great news bud, if he is happy with the way things are now, things surly can only get better. Always thinking of you and the family mate, hope all goes well.