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Some might of noticed I've hardly been on here for quite a while, work at SFS has been ridiculously busy with shows and staff holidays. Kind of lost my mojo on the cars again and even the garage build has stopped :sad:

 

I have to see the surgeon in 2 weeks as my specialist has said there's nothing he can do for me and the internal reconstructional surgery they did 12 years ago all has to come out and they can't redo it again as I have lost to much of my small bowel as it is. Gutted is an understatement, I'm not sure how I face this as before the reconstruction I had a tempoary fix which I hated and now this will be a permanent thing. I know this seems a little criptic but some people know my problems and should be able to work it out, at 38 this isn't something I want and my wife has had no experience of it either, its worrying how she and indeed I will feel with this. Took the step today to call the specialist nurses about counselling which for me is a big step as I 'don't do feelings' and usually do the pull yourself together speech but I know confidence will nose dive even if all goes well with no complications, just finding it hard to motivate myself about anything at the moment....

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And here I am, complaining of a sore throat and a bad back - puts it all into perspective really.

 

Hope you're on the mend soon.

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Catheter and abdominal drain out and off pca/morphine to. Busy morning so tired now but still physio and stoma nurses to go yet!

Ive followed this thread right from the start each and every post and you give me inspiration mate, and i salute your attitude not to let this beat you dispite getting rolled around the butchers table like you,ve just bought a morning paper:bow::bow:....get well soon matey.

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Ive followed this thread right from the start each and every post and you give me inspiration mate, and i salute your attitude not to let this beat you dispite getting rolled around the butchers table like you,ve just bought a morning paper:bow::bow:....get well soon matey.

 

Thanks, sometimes I worry people will think I'm just winging but it does help to talk and let of steam !

Missing the PCA now as new pain relief isn't as good, eagerly awaited food today and it turned out all I could have that was suitable was a ham sandwich and a yogurt, and the bread was stale #disappointed! Had a bit of a scare this afternoon as abdomen swelled up and was painful, turns out its the introduction of food into into the small bowel and the fact they need to start working to move things through, judging on how much pain the pressure is causing it would be wise to stand back when the do work!

Aww. Shame you couldn't enjoy your first meal. Can you get somebody to make something nice you are allowed and bring it in for you? Hossie food can be very hit and miss!

Thanks, sometimes I worry people will think I'm just winging but it does help to talk and let of steam !

Missing the PCA now as new pain relief isn't as good, eagerly awaited food today and it turned out all I could have that was suitable was a ham sandwich and a yogurt, and the bread was stale #disappointed! Had a bit of a scare this afternoon as abdomen swelled up and was painful, turns out its the introduction of food into into the small bowel and the fact they need to start working to move things through, judging on how much pain the pressure is causing it would be wise to stand back when the do work!

 

Hi mate, sounds like you've had a tough time of it to put it mildly!! About to start down the surgery road myself having the initial consultation just a few weeks back. Not the most pleasant of illnesses for sure and at 1st I avoided talking about it but have found having a chat/whinge can be necessary!!

 

Hope it starts to get easier now and wish you all the best in your recovery.

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Thought I'd check in with an update. Well Saturday went downhill and in the evening the swelling increased and the pain was unbearable, couldn't even let the nurse touch it without screaming the place down. A shot of tramadol and some morphine later knocked me out until the on call doctor woke me for a prod, he decided x-ray time and I was there at midnight. Shows I have distended intestine but they don't know why so back to nil by mouth after only 1 day of eating in the last week. Sundays a bit of a blur from pain relief but the consultant comes in and arranges a ct scan that afternoon, again intestine has a few loops distended probably due to the fact it's shut down from the trauma and all the adhesions they removed in theatre. Started fluids that night but problem is what's going it is struggling to get out, need to get mobile but its tough with the pain. Managed some liquid food for lunch and then 2 spoon fulls of diner before everything is back up but tbh I felt better for it.

So the last two days I've got more mobile and eaten a bit and things are starting to move slowly so just need to build on that, been in a week already and maybe another week to go. My wife and I are also coping with my new set up of anatomy well and she has been amazing and really supportive.

Keep on battling, mate. Sounds difficult, but also sounds like you're getting through it. Well done and good luck ;)

  • Author

A great nights sleep but woke up with a familiar 'heavy' feeling in my stomach. Skipped breakfast and tried to sleep it off but this afternoon up it came :-(

That aside the nurse said she was impressed as 1.2 ltrs of sick is one of the most she's seen! Nil by mouth yet again

A great nights sleep but woke up with a familiar 'heavy' feeling in my stomach. Skipped breakfast and tried to sleep it off but this afternoon up it came :-(

That aside the nurse said she was impressed as 1.2 ltrs of sick is one of the most she's seen! Nil by mouth yet again

 

You need some Irish Stew in you mate.

  • Author

Well 10hrs later and no food or drink how the f@@k can I throw up 1.3ltrs again !

 

Really struggling now, must of dropped a stone at least :no::crying:

Poor luv. You're really going through it, especially if you can't even sip water :-( hope tomorrow is a better day

Be strong Anthony hope everything goes accordingly, and my mams cooking is enough to bring up anything lol.

Evening mate, was gonna be a smart arse and say that I had a kebab last night and my ring is louping,

or you aint had anything pumped out your stomach till you have eaten in my wifes kitchen,

or some other stupid comment !

 

Followed this thread since the start, and avoiding any slushy sympathy,

 

my wife, Fiona and I wish you a speedy recovery.

 

Alan................

  • Author

Thanks for the support guys, and to my wife who without I think I would of given up by now.

 

The problem is part of my small bowel isn't working due to the surgery trauma causing bile and fluid to build up in the stomach. Until this section starts working again all they can do is iv fluids and keep syringing out the fluid to rest the bowel. It's a waiting game over the next 3-4 days with the most uncomfortable tube up my nose and down my throat. According to the assistant in surgery who came round today they spent 4 1/2hrs alone cutting adhesions off my bowel to free it all up let alone fixing the perforation and making a loop ileostomy.

 

Medicine today eh !

Just seen this thread.

 

Really hope you have some relief soon mate.

 

You have been going through something difficult for a while now and it's not just the physical problems, it becomes mental too.

 

Your a fighter though so keep fighting, god bless.

Just sat and read this from the first to last post, WOW keep going mate! Your doing bloody excellent, even if it feels like you haven't got anymore to give or any energy, just keep going!! I suffer big time from bowel problems but nothing to this scale, hats off to you sir! Hope you a very speedy recovery! Keep us all updated as I'm sure we will all be over the moon once you tell us all your home and doing brilliant!!

 

Regards, Adam :)

Just sat and read this from the first to last post, WOW keep going mate! Your doing bloody excellent, even if it feels like you haven't got anymore to give or any energy, just keep going!! I suffer big time from bowel problems but nothing to this scale, hats off to you sir! Hope you a very speedy recovery! Keep us all updated as I'm sure we will all be over the moon once you tell us all your home and doing brilliant!!

 

Regards, Adam :)

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