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Some might of noticed I've hardly been on here for quite a while, work at SFS has been ridiculously busy with shows and staff holidays. Kind of lost my mojo on the cars again and even the garage build has stopped :sad:

 

I have to see the surgeon in 2 weeks as my specialist has said there's nothing he can do for me and the internal reconstructional surgery they did 12 years ago all has to come out and they can't redo it again as I have lost to much of my small bowel as it is. Gutted is an understatement, I'm not sure how I face this as before the reconstruction I had a tempoary fix which I hated and now this will be a permanent thing. I know this seems a little criptic but some people know my problems and should be able to work it out, at 38 this isn't something I want and my wife has had no experience of it either, its worrying how she and indeed I will feel with this. Took the step today to call the specialist nurses about counselling which for me is a big step as I 'don't do feelings' and usually do the pull yourself together speech but I know confidence will nose dive even if all goes well with no complications, just finding it hard to motivate myself about anything at the moment....

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Really sorry to read this mate, keep strong and remember that you can always come here for a chat if it's getting too much.

 

My thoughts are with you bud.

 

Steams

I dont know of your past problems nor do i want to pry but i wish you all the luck and hope things get easier for you :)

Although it wont be the outcome you wanted, i take it you will have to have the .......fitted? you will have to adapt to have some quality of life.

 

I hope im not speaking out of term or barking up the wrong tree. All the best for meeting with the surgeon and hope they can offer some form of outcome.

  • Author
Although it wont be the outcome you wanted, i take it you will have to have the .......fitted? you will have to adapt to have some quality of life.

.

 

You got it spot on mate...

Edited by Anthonyd

Some might of noticed I've hardly been on here for quite a while, work at SFS has been ridiculously busy with shows and staff holidays. Kind of lost my mojo on the cars again and even the garage build has stopped :sad:

 

I have to see the surgeon in 2 weeks as my specialist has said there's nothing he can do for me and the internal reconstructional surgery they did 12 years ago all has to come out and they can't redo it again as I have lost to much of my small bowel as it is. Gutted is an understatement, I'm not sure how I face this as before the reconstruction I had a tempoary fix which I hated and now this will be a permanent thing. I know this seems a little criptic but some people know my problems and should be able to work it out, at 38 this isn't something I want and my wife has had no experience of it either, its worrying how she and indeed I will feel with this. Took the step today to call the specialist nurses about counselling which for me is a big step as I 'don't do feelings' and usually do the pull yourself together speech but I know confidence will nose dive even if all goes well with no complications, just finding it hard to motivate myself about anything at the moment....

 

Really feel for you mate. I suffer from the same disease but am very fortunate in that mine is only moderate (never been hospitalised) and even that is extremely unpleasant to live with.

 

Try and keep your head up, from the forums there are people who had to go down your route and say once they adapted it does increase quality of life. Hope this is the case for you and wish you all the best.

Anthony my heart goes out to you Fella,we spoke about this when we last met and i can only say im sorry its come to this for you bud.Mate im hoping you adapt well to your change of circumstances and wish you the very best.

Anthony, no easy way to answer this in any away, regardless of what happens, stay positive, for yourself and your missus, be strong and take each day as it comes, dont think about the negative sides, think about the positives.

keep your chin up mate, if at any time you just want to let of steam, just do it, there is a cracking bunch of people on here, all will offer there own words.

stu

  • Author

Thanks for the messages guys, Thursday I see the surgeon so will have a better idea of what/when is happening but have seen the consultants letter to him already and he's sure there is no alternative. Strange thing is I know if all goes well it will be better in the long run but know how I feel about myself will hit rock bottom and that's the bit I can't accept. My 1st wife said to me when I had the 1st op before it was reversed that 'you're stuck with me as no one else will want you like that' I know my new wife is nothing like that but I think that's the thing I can't get over..

I don't know you but you seem to me to be a very strong man inside and out! No matter what life throws at you I'm sure your wife will love you unconditionally, beauty is on the inside as well as the outside so keep your spirits up and your chin and all the best for thursday :)

Its hard when you are given life changing news, and even if you are aware it's in the pipeline, it's still difficult to take in when it actually happens. Give yourself time to get your head around it. I know how you feel as I have been going thru some major medical issues myself this year. I always find it helpful to try to find a positive from the negative, in fact I wouldn't leave the hospital grounds until I had found something to smile about no matter how grim the news had been.

Will this op reduce your pain / discomfort levels? I'm sure in reality once you get used to things you will take it in your stride x

  • Author
Its hard when you are given life changing news, and even if you are aware it's in the pipeline, it's still difficult to take in when it actually happens. Give yourself time to get your head around it. I know how you feel as I have been going thru some major medical issues myself this year. I always find it helpful to try to find a positive from the negative, in fact I wouldn't leave the hospital grounds until I had found something to smile about no matter how grim the news had been.

Will this op reduce your pain / discomfort levels? I'm sure in reality once you get used to things you will take it in your stride x

 

Thanks :bow:

  • Author

Oh well.....

 

I guess I know what was coming, the surgeon didn't mess around with 'more test' 'another option' basically I have none, the surgery construction they did 12 years ago has had it's day, if they redo it chances are it'll go the same way.

 

So 1 hour with him, 1 hour with the specialist nurse, 3-6 months time and 5-6 hours on the operating table / 6 weeks recovery and that's me done and this time its permanent. I know deep down it's the best and only option and will make things better but still not easy to come to terms with :sad:

Oh well.....

 

I guess I know what was coming, the surgeon didn't mess around with 'more test' 'another option' basically I have none, the surgery construction they did 12 years ago has had it's day, if they redo it chances are it'll go the same way.

 

So 1 hour with him, 1 hour with the specialist nurse, 3-6 months time and 5-6 hours on the operating table / 6 weeks recovery and that's me done and this time its permanent. I know deep down it's the best and only option and will make things better but still not easy to come to terms with :sad:

 

 

Keep your head up mate

i know the outcome is ideally not what you wanted but i do work for a builder who has the same thing and has done for 15 years,he has learnt to adapt and lives a full life and looking at the way he rips houses apart with no visable evidence is very humbling i can tell you.....goodluck bud:wink:

I've just caught up with this Anthony and I'm sorry to hear about it mate.

 

I wish you all the best and, as you're a strong person, I'm sure you'll come with the situation just fine - we're all right behind you Anthony so good luck my friend!!

 

Richard

I have something to say............ It's better to burn out than to fade away..... :tt2:

Sorry to hear this Anthony. Sending hugs & only ever on the end of a PM if you need a chat x

  • 4 weeks later...
  • Author

Again, thanks for the support guys and gals. I haven't been on here for a while as I have seriously curbed online time in the evening as it usually lead to working and had decided on some time for myself for once. I had a week away and replied to one customer telling him to contact the office as I was away and he said 'that's not good enough' :mad2:

 

We went Malta for a week to chill and reflect and I am feeling better about the situation at the moment, I even did a PADI diving course and now have my open water licence. I figured it gives me a target next year and if I can get back to diving then it won't stop me doing anything....

Probably the best thing you could have done, having some "me" time. Chance to relax and get you're head around things. Have always wanted to learn how to dive but never got beyond looking thru my lilo!

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