I'm writing this as everyone has gone to bed and

I just don't know where to put myself.

Last week my son Harry (my little champ) went

for an op to do a biopsy on his neck,today we

got the worst news ever,he has cancer.He's 9

and a half and everything to us as children are

to their parents.Finding it so hard, as like most

kids they believe Dad doesn't cry.I havn't in front

of him as if he see's any weakness in me he'll

know there's something sadly wrong.His Mum and

me feel like our insides have been ripped out.

I know I shouldn't probably be writing this here

but I hope you understand my frame of mind,I

just feel so helpless.Its only just over a year ago

I lost my Mum with cancer.Harry idolised her and

saw what she went through to a certain extent.

So he is having to cope with a hell of a lot for his

age.(I know there are thousands like him but you

just feel your the only ones)

 

I'm like everyone else I'd moan about the slightest

little thing going wrong,but boy does this put things

into perspective for me.(nothing else seems important

now).

 

Sorry for writing here but your all a great bunch and

Harry loves his Z's as much as me and I just want to

send the message"Appreciate life when its good and

all is well."

Its surprising how we take the little things for granted

and believe me I'm the first to put my hand up for

being guilty of that.

 

All the best .

Hope you get this before Sunday Graeme as

I'm no longer where you came for the seats.

Would have most likely been out most of day

anyway as Harry having chemo again, then

dropping in on his Grandad.

Cheers for your messages and support mate.

 

 

lol Er no I dint mate, not to worry ice cream and taxi man live there now.

If your still about in the Whitchurch area drop me Pm with your addie.

hope everthing is going ok at the mo, Me mum's on the chemo once a week now So i have a little idea what your going through.

be strong

graeme

John,

 

Good news about the Bone Marrow, as you say, one less thing to worry about.

 

Probably a daft question, but although wee Harry will be fussed after no questions, how are you and your wife ?

 

Take care of each other, as you both need to be strong for wee H !

 

Hundreds of miles away bud, but if there is owt me and Fiona can do, please dont hesitate to ask. ;) At times like this, you realise this is no ordinary club.

 

Any updates, please let us all know bud.

 

Alan, Fiona and Laura.

lol Er no I dint mate, not to worry ice cream and taxi man live there now.

If your still about in the Whitchurch area drop me Pm with your addie.

hope everthing is going ok at the mo, Me mum's on the chemo once a week now So i have a little idea what your going through.

be strong

graeme

 

Really sorry you didn't get message in time.So sorry your Mum's having to have chemo (lifes so damn cruel).Send your Mum our best mate and you and yours look after yourselves.Our heads are just all over the place at the moment,everything taking it's toll.Harry is eating really well due to steroids but his emotions are up and down.Sarah is not feeling too well,feeling sick and drained,hurts a lot as Harry is snapping one minute then in floods of tears the next.When we hopefully get on top of things and coping better I'll pm you.

Take care mate .

John,

 

Good news about the Bone Marrow, as you say, one less thing to worry about.

 

Probably a daft question, but although wee Harry will be fussed after no questions, how are you and your wife ?

 

Take care of each other, as you both need to be strong for wee H !

 

Hundreds of miles away bud, but if there is owt me and Fiona can do, please dont hesitate to ask. ;) At times like this, you realise this is no ordinary club.

 

Any updates, please let us all know bud.

 

Alan, Fiona and Laura.

 

Hi Alan,

 

On the surface mate,we probably look to be coping well

but behind closed doors and when on our own we have

to let go,you just feel like your crumbling inside,we're

feeling so many different things,frightened,worried,angry,

upset and the list goes on.It is starting to make Sarah

feel physically unwell now.I know I'll never take the worry

away but I hope she will listen when I tell her to rest.

 

Like you said mate,this is no ordinary club and believe me

I couldn't put a price on what it has meant and how much

its helped me to be able to post on here and get all your

messages (everyone has helped so much).

 

You might be hundreds of miles away,but getting your

message and offer of help means so much and that goes

for everbody on here. Its so good just knowing your all

there.

 

You ,Fiona and Laura look after yourselves.

Stick in there , John . We`re all behind you and yours .

Hi All,

Just a quick update.Harry's Dr has said he's very pleased

with how the chemo has reduced the size of the lump in

Harry's neck.He went to clinic today and now won't go back

until next Thursday when he will have another 4hr chemo

session to start another block of treatment.In the meantime

he has to continue taking his steroids (eating all the time,thank

God)The one side effect we don't mind as he needed to gain

weight and weighing today he'd gained 1kg.Apparently from now

will be when he's most vulnerable to infection and everything else

so we have been issued with antibiotics he must take Saturday

and Sunday as a preventative measure against some of the more

severe infections.

His bed is in our bedroom so we can keep our eye on him,we've

told him to wake us anytime.Felt so proud and sorry for him this

morning, he said "Tell you what Dad I felt ever so sick at 11 minutes

past 3 but you and Mum looked so peacefull I didn't want to wake

you,I just went to the bathroom for 5 minutes then back to bed,thought

of some songs I like and went back to sleep." Don't kids amaze you with

how they are.

He's still understandably very depressed and tearfull many times each day

but on the whole I think he's coping fantastic and so proud of him.Hoping

now that he doesn't get an infection.

Anyway I'll keep you all informed how Harry's going on and a Big Thankyou

from us all for all your support.

 

Look after yourselves.

its great to hear hes doing well, still looking forward to the all clear post , take care

 

Kev

Great news. Thats cheered me up for the day.

:)

Bless him, he sounds like a great kid. good to hear the news :)

 

x

hi there Redzed

 

this is car.mads mum.

he has just shown me this thread and i am so sorry to hear about your little boy.

My keyboard is wet through with the tears i have shed reading this.

this truely is a very awful thing to happen so such a small sweet little boy and hope and pray he will be better very soon.

 

god bless you all.

Bless him, he sounds like a great kid. good to hear the news :)

 

+1 on that. Keeping my fingers crossed for a speedy recovery, and I am absolutely in awe of how strong you - and Harry - are being.

 

I can't imagine finding strength like that in myself, so you have my admiration.

Hi John

 

Great that your son Harry is responding to treatment; He is a very brave little boy

 

Sometimes life throws us a curve ball and you have to make the best of it, You sound like a very loving and caring dad and are doing just great

 

I wish you and your family all the best and we are all here if you need anything

I'm also a complementary therapist ( Aromatherapy, Massage, Reiki) if you, your partner need anything, to help with stresses of the situation, I'm happy to help, just ask!

I've only just seen this fella and just thought I'd let you know that my heart goes out to you and my best wishes for everything to go well.

 

I had a similar experience when my eldest son was 4. we'd noticed that he held his head to one side all the time and then found a lump in his neck. We took him to the doctors and they made an appointment at the hospital. The Doc said its nothing to worry about anf that he believed it was fiberious tissue in a group of nerve endings.

 

The hospital examined him and then took a biopsy. When the Word Malignant tumour came out of the doctors mouth my insides turned cold and I'm sure I didn't breath for an hour. My wife just fell apart it was truly awefull. We had to get ourselves together not to frighten him. The worst time of my life and reading this has brought it all back and I deeply symperthise with you and understand how you must feel.

 

Fingers crossed it will turn out fine as it did for us. He's now a big smelly 19 year old. He's run for shropshire, played rugby for Shropshire, Whitchurch and Mold. He can be a real pain in the arse, but he is fine and well and we love him so I pray that all go well for you.

Hi

As you know I posted last night and was hoping Harry

wouldn't have to go back to hospital till next Thursday

but unfortunately he developed ulcer's all in his mouth.

Apparently this is due to the chemo so they precribed

him a spray and also a mouthwash as it may become

very painfull to eat and even drink.

He's not had a very good night, tonight ,he was very

weak,aching all over and saying his legs feel so heavy

to walk + hasn't eaten the same.Hoping he'll have a

good sleep tonight and feel better tomorrow.

Thankyou for all the added messages (as usual,there,

all really helping).

For now I know I'm only thanking you all on a whole,

but when hopefully things settle down,I hope to sit

down and thankyou all individually,because each and

every one of you deserve it for your help and support

your giving.

I'll keep you all posted.

 

Wish you all a good weekend.

Thinking of him, give him my love and big hug. ;)

Really sorry to hear he's got the mouth ulcers on top of everything else - from what I understand it's quite common, but that doesn't make it any less unpleasant! :(

 

Hope he's feeling at least a little better soon :)

Glad the chemo is goin well and our fingers are crossed that it continues to do so. Ulcers- not nice! Hope that clears up as quickly as poss for the lil man.

 

You're in our thoughts every day bud. Keep strong.

 

Neil, Lou and girls xx

Glad to hear things are getting better, best wishes

Have only just seen this thread and after reading through it I am in tears.

 

Good luck to brave Harry and wishing him a speedy recovery.

 

If there is anything I can do to help then let us know, I'm not sure what good I would be but I'm sure as a club we can organise almost anything.

 

Darrell and Karen

Have only just seen this thread and after reading through it I am in tears.

 

Good luck to brave Harry and wishing him a speedy recovery.

 

If there is anything I can do to help then let us know, I'm not sure what good I would be but I'm sure as a club we can organise almost anything.

 

Darrell and Karen

 

Thankyou Darrell & Karen + Everyone on here.

 

Hope you don't mind us still using a pic of your car when we owned

it,as the signature pic.Harry and me loved that motor and it was an

extremely sad day for both of us when selling her.

 

Update on Harry:

Had Harry up since 2:15am in real pain in

his lower back,especially in the 2 areas they

took bone marrow from.Rang hospital who

advised giving him paracetamol suspension.

Took him in first thing ,he was eventually seen

by Dr and then had bloods took.Told that bloods

have now dropped really low from chemo as

expected and this causing pain.We now need to keep a close eye on his temperature.Given prescription of Ibuprofen Suspession for pain relief then back home.

Must admit this is just the beginning but it was pitiful

to see him struggling with the pain as he's not one

to complain.He's also hating the weight he's put on

his belly as he say's it feel's like it's stretching his

skin.

I had thought Harry was starting another week of

chemo Thursday (Shows how I'm listening but not receiving "heads just mashed")

It is actually a 4hr session on Thursday (his 15th and

final day of this block of chemo) he will then have 2

weeks off and then start all over again for his second

block.

Will keep you posted.

Look after yourselves.

I know it is really hard to see any of your children in pain because you think it is your job to protect them. You have to be strong for him so he can draw strength from you.

 

I'm sure he'll bouns back. You'll be amazed at the speed he will recover, but the worst will proberbly come a week or so after the chemo. My thoughts are with you all.

 

Where in Shropshire are you? If you like I could come down in a week or 2 and give Harry a run in either my little red or the blue monster if you think that would cheer him up. I'm near Elssemere.

hi redzed,wot can anyone say hope all goes well for harry hope you and mrs redzed stay strong hes gotta a diamond of a dad to help him get well in our thoughts and prayers mucker ,paul chelle ,nathan samantha ,emily ,and the bump take care

I know it is really hard to see any of your children in pain because you think it is your job to protect them. You have to be strong for him so he can draw strength from you.

 

I'm sure he'll bouns back. You'll be amazed at the speed he will recover, but the worst will proberbly come a week or so after the chemo. My thoughts are with you all.

 

Where in Shropshire are you? If you like I could come down in a week or 2 and give Harry a run in either my little red or the blue monster if you think that would cheer him up. I'm near Elssemere.

 

Thanks for that mate,when the time is right for him,

if its ok with you,I'm sure he'd love it.We're in the

"sticks" just outside Whitchurch.Sure we've seen

your blue monster in Overton ages ago (used to

go to the play area with the kids).

Like you said, he just needs us to stay strong for

him.Will all be doing our best as I'm pretty sure it

will get worse before it gets better.

Be in touch when the time is right mate.

All the best.

hope things go as planned for you all and the little one gets better soon

Thanks for that mate,when the time is right for him,

if its ok with you,I'm sure he'd love it.We're in the

"sticks" just outside Whitchurch.Sure we've seen

your blue monster in Overton ages ago (used to

go to the play area with the kids).

Like you said, he just needs us to stay strong for

him.Will all be doing our best as I'm pretty sure it

will get worse before it gets better.

Be in touch when the time is right mate.

All the best.

 

No problem It would be my pleasure. I bet my blue Zed was outside Wasons Garage store. Or was I passing by.