Some might of noticed I've hardly been on here for quite a while, work at SFS has been ridiculously busy with shows and staff holidays. Kind of lost my mojo on the cars again and even the garage build has stopped :sad:

 

I have to see the surgeon in 2 weeks as my specialist has said there's nothing he can do for me and the internal reconstructional surgery they did 12 years ago all has to come out and they can't redo it again as I have lost to much of my small bowel as it is. Gutted is an understatement, I'm not sure how I face this as before the reconstruction I had a tempoary fix which I hated and now this will be a permanent thing. I know this seems a little criptic but some people know my problems and should be able to work it out, at 38 this isn't something I want and my wife has had no experience of it either, its worrying how she and indeed I will feel with this. Took the step today to call the specialist nurses about counselling which for me is a big step as I 'don't do feelings' and usually do the pull yourself together speech but I know confidence will nose dive even if all goes well with no complications, just finding it hard to motivate myself about anything at the moment....

Well 5 more days of up and down! 9 kg lost so far and still not eating, they really don't want to go in again so are waiting for things to start going. Started a new med yesterday that's supposed to stimulate the small bowel so we'll see how that goes. They've spent 2 days talking about a tpn feed into my neck as haven't eaten for 16 days but again it seems to be a dangling carrot and 'we are thinking about it but not sure' so frustrating and I think Kerry is ready to kick off soon to get some decisions made ! At least with being here so long the wound has healed well and the 26 staples are out !

Well 5 more days of up and down! 9 kg lost so far and still not eating, they really don't want to go in again so are waiting for things to start going. Started a new med yesterday that's supposed to stimulate the small bowel so we'll see how that goes. They've spent 2 days talking about a tpn feed into my neck as haven't eaten for 16 days but again it seems to be a dangling carrot and 'we are thinking about it but not sure' so frustrating and I think Kerry is ready to kick off soon to get some decisions made ! At least with being here so long the wound has healed well and the 26 staples are out !

Well still here guys. Not much to report, bowel still not working and still not eaten. I have been moved to another ward the specialises in intravenous feeding as if nothing is going by Monday then they are starting me on that. Lost about stone and a half so far, problem was i didn't have any to lose to start with. Fingers crossed the new drug they've started me on gets things going.

 

Loads to do on the Z to, about the only show I'll make at this rate is jap show finale, anyone want to help as I'm buggered lol!

Wish I was closer mate but I am sure there are some closer members who can help. Keep your chin up and hope you get sorted and out of there soon.

Woohoo, I finally got the all clear to eat, my last proper meal was 3 weeks ago!

Soft diet to start a d then build up so if I get through tonight ok then things could be looking up finally

Woohoo, I finally got the all clear to eat, my last proper meal was 3 weeks ago!

Soft diet to start a d then build up so if I get through tonight ok then things could be looking up finally

 

Brilliant news Anthony hope it all goes down well and stays down.

Woohoo, I finally got the all clear to eat, my last proper meal was 3 weeks ago!

Soft diet to start a d then build up so if I get through tonight ok then things could be looking up finally

Fingers crossed for you Anthony.... Hope all goes well tonight.....

Russ

all the very best mate

 

rich

That's great news! Hope you get something better than gruel!!!

Some discomfort but all seems ok so far and working. Day two of mission 'eating', hospital food never tasted so good lol. Fingers still crossed but looking good so far, only the drip left, ng tube and catheter gone as well. Feeling a lot better so some post whoring might start soon:shifty:

Edited August 11, 201312 yr by Anthonyd
Ffs, had to edit 3 times !

Oh crap, he is feeling better......lol

Just because they are letting you have some soup or gruel, don't think you can turn into a post whore........:whistling:

Couple of good days with food and things but writing today off, not good and feel sick as a dog. Enough said :-(

Apologies for yesterday's rant, had a bad day. Seems now they've got things going they are 'going' too much. Should output a out 1000ml but yesterday it was 2600ml hence feeling so ill, with fluid in my fluid balance was still 900ml the wrong way!

Feeling better today and now start meds to slow things down, ironic after 2 weeks of getting them going!

I suppose its not unusual for things to be a bit 'erratic' to begin with. Your body has had a major shock obviously. Hope things settle down for you.

Well still struggling, the new drug got things going well and truly, now things are going too much. I should output 1000ml a day but last two days was 2600&3700ml so they started a new drug to slow it down. That worked to well and it all stopped so been in agony today with it backed up. So no drugs of any type until tomorrow where I guess they start again until they get it right. It's tough as I'm still in pain either way.

Sorry to hear this mate, you have my sympathy. That can't be nice. Let's hope they get your meds sorted soon. Chin up mate.

Last few days have been agony, back on morphine to get me through. Output is still way to high, on a special hydrating fluid that is strictly limited to 1 litre a day, 500ml free fluid, food and that's it with the drip as well but still washing through. Something isn't right and pain of food moving through is worse than the pain last week. Only thing they will do is pain killers which double up to slow the bowel, today they doubled the dose as no results. Fluid chart shows lost 2ltrs yesterday compared to intake and today's output isn't any lower. As things are just washing through food absorption is very good as lost another 3kg this week a d now down from 11st 10 to 10st in 5 weeks.

 

The wife has been great in supporting me but the stress is taking a toll on both of us, she can't sleep and is worried sick. I just don't know how long I can keep going mentally before I go in to a meltdown, I think we are going to ask for a meeting in private with the consultant next week as a ward round 5 minute update doesn't really help.

Just keep on fighting mate, I'm a firm believer of battling these kind of things. Seen a few circumstances of people laying down and letting various illnesses take over them. When things get too bad they have tried to fight back, but it's so much harder if you haven't battled it all the way through. Good luck.

Good luck mate - it WILL be worth it in the end - even though it may not seem like it sometimes at the moment... But Just hang in there and keep fighting.

Come on mate grit your teeth and get over this tvvat of an illness...Ime sure you and the missus have deep down strength to get through this.Goodluck and ime rooting here for you:gunsmilie::wink:

Hi Anthony, hope things are getting better for you mate...... Everyone here is behind you and thinking about you...... We're all just waiting to hear your home and on the mend......

Russ

Thanks folks. Well Monday they decided to put me on tpn feed as weight loss was continuing. Not a nice thing, while I was awake and only with a local they put a line into my jugular vein. No pain but one of the most uncomfortable hours of my life! It is helping with nutrition as they feed 2ltrs of this mix straight into the blood stream. Some good news is output has slowed today which is a positive, have picked up a throat infection tho and I'm really tired but there has been some progress at least.

Well that's mostly good news. I sort of know how you feel as I had to have a line fitted the other week. Very weird more than anything. At least you can get some nutrition in you now which will hopefully help with the tiredness. Hang on in there. Things have gotta get better soon.

Well it's warm today, stuck with a temp of 39.5C all day!

5 weeks and still in, not going to plan at all. Still a temperature of 39.5C so the line in my neck has been taken out as think that might be the source of infection, so means i might have another put in. I'm sure there is and end in sight somewhere!